My view atm 🤷♀️ This week has been filled with stress, anxiety, stress, more stress... 😅 Things have been crazy and turns out, organising a festival is hard work. Who knew ay? I'm thinking of doing a blog post about it soon, I'm not sure, it's been a minute.
I'm looking forward to my hEDS appointment with the specialist down in London, only a couple months of waiting left til I finally get some answers 🤞
Thought I'd do an intro for the new followers I've gained lately!
So, I'm Maddie, I'm 18 and I live in the UK. So lets explain this car crash of a body 😂🙄 I've been ill since I was 9, first being diagnosed with Hashimotos, an autoimmune disease that essentially ends up attacking the thyroid. As a consequence, I was diagnosed with Hypothyroidism when I was 11, a condition in which your thyroid does not work properly or at all. I'm on meds for this and will be for life. Next came the Myalgic Encepholmyelitis at 13 (M.E), a neurological debilitating illness that left me completely dependant on my mum, bed bound and unable to perform any ordinary task. For those few on this page that don't know these conditions, I'm trying to explain them the best I can! M.E causes fatigue that debilitated the entire body, pain that never leaves, nausea, sensitivity to light, touch, smell, noise, the list goes on. I was house bound for 2 years after, being a total of 3 years, I've always used a wheelchair since the diagnosis and probably always will. I was also diagnosed with Hypermobility Syndrome at 13 too. Next Postural Orthostatic Tachycardia Syndrome at 14, a condition which causes the heart rate to increase and the blood pressure to drop upon pretty much all acts of movement. Next, Raynaurds Phenomenon, a POTS related condition which turns my hands and feet white and sends them iccy cold. 16 I was diagnosed with Alopecia Areata after my body crashed horribly making patches of my hair fall out. 17 I was diagnosed with Fibromyalgia although they believe I've had it since I was 13 too. Fibromyalgia is a neurological disease that causes wide spread pain mainly through the back, shoulders and legs but normally effects everything. 17 I was diagnosed with hEDS, Hypermobility Elhers Danlos Syndrome, a connection tissue disorder meaning everything over stretches causing pain, frequent dislocations, skin that bruises and tears easily, and a number of other complications internally. There are 14 types of EDS currently.
So that's my medical account expalined, any spoonies in need of a chat, my messages are always open! 💙 Hope you're all as well as can be 😄😄
