Being M.E awareness month, I normally plan to do something dedicated to raising awareness and maybe even some money but most the time never follow through with my plans. One reason being I’m not well enough at the precise moment in time, the other being we just can’t make it happen.
This year I was determined, what my mother calls a fighting spirit. I was leaning up against the kitchen counter, watching my mum stir the curry sizzling away in the pan, talking to her about my ideas. I don’t even remember how we came to the conclusion, yet Lewis, my younger brother, ended up suggesting a concert performed at his school with his band ‘Razor’ (courtesy of my dad). I got so excited, I ran, well jogged… powerwalked up the stairs, launched myself onto my bed and wrote down all my thoughts, plans and ideas for raising money, eventually forming a some what well written letter to the head of his school.
Skip forward a day or two, my brother had already asked his music teacher, who is a member of his band, planned everything out and managed to get the rest of the band on board. I however was still waiting for an answer. I finally got what I was looking for, the go ahead, and everything was planned to perfection.
Today was the day of the concert, broken down into two sections. One half for year 5 and 6, the other 7 and 8. My brother, he plays the drums in his band. He doesn’t just play the drums though, he puts his heart and soul into it and my god, is he good. His playing leaves me shocked every time I watch him play, a true musician, young or not.
I managed to read out a short speech on my experience with the illness, and Lewis’ music teacher introduced it. I had the worst case of shakes ever reading it, but I did it, twice, in front of 450 pupils. Anyway, it was really nice to see his teacher so passionate about helping me and 250,000 other people in the UK. A great act of kindness, taking a weeks notice and planned this concert to the second, raising as much money as he could possible. You don’t get many people like that anymore, do it because they want to help and not for their own personal gain.
Razor honestly did amazing, raised a lot of money too. My brother, he’s a little star. We fight like dogs sometimes, get on each other’s nerves and like to tease each other on a regular basis, but he will always be there for me, as I will him. I can honestly say I’m so proud of him, his pure talent, kind heart and the person he’s slowly becoming. So yeah, proud big sister moment here, I think proud mum and dad moment too. After I had read my speech out and he started playing, I caught myself grinning from ear to ear. I looked to my left to see a row of 4 people, doing the exact same thing. You didn’t have to ask my parents whether they were proud or not, you could see it in their eyes, their smile. I love that sight, it truly makes me really happy. One of many, many, MANY moments I’m reminded just how amazing my family is.
Today was a success, two proud parents, two proud grandparents, and a proud big sister, all in the name of M.E. From all the bad this illness has brought me and my family, today we all fought back and hell did we do good. We’re in this together.